Well I know it's been a tad more than a week and most of you already know this but.....I MADE IT THROUGH!!!! It has taken me this long to touch base simply because I did have one challenge...sitting. But I am able to sit for a bit now without needing the hard drugs.
So for the details, here they are, and bare with me.....it starts on the Thursday August 1st where I was not allowed to eat. Well, I was but just clear fluids....for a whole day....no fruit, no grains, not candy!!!! I was not liking this part one bit. But if I have to put things into perspective, at least this meant I didn't need some medical intervention to empty my bowel. Eeek, I'll stick with the fluid thing thank you very much. Friday morning's arrival time at the hospital was 6am so at least I didn't have another half day to sit and starve. My dad, my wonderful dad picked me up and drove me once again to the hospital and stayed with me until once again, I was dressed in my lovely hospital fashion, set up in bed, meds in my belly, and the porter came to escort me to my big 'performance'. Operation Room 9 this time. I did get to see my oncologist and surgeon before getting put to sleep this time which was strangely comforting. Nothing like seeing into the eyes of the person who was about to cut you open and rip some of your parts out. What can I say, I guess I wanted to make sure she had her morning java and a good hearty breakfast in her before beginning. If you read back on the last surgery, it's quite similar: anesthesiologist playing with my hand, heart probes going on my chest, warm blankets, tears, mask and sleep.....(this surgery was scheduled to be about 3 hours and I was put to sleep through IV and mask as well as breathing tube inserted but the breathing tubes was only going down my throat once I was asleep and removed while still asleep). Then there was light....the good kind....NO not the big bright shining light with a gentle yet strong hand reaching out to me, but the overhead light to the recovery room with my nurse asking me about pain levels, who was I and where was I. Apparently I wasn't able to answer because my face was so scrunched up from pain that they were inserting pain meds in many places that would allow for fast absorption (use your imagination there). Once I was down to about a pain level of 5, they were able to instruct me on the push button that would inject me every 6 minutes with morphine. Let me tell you, 6 minutes doesn't normally sound like a long time but there was a period of about 2 hours where those 6 minutes were hard to be patient for. Nothing made me as happy as that little green light flashing indicating to me that I was ready to push for another morphine shot.
To make this not too lengthy, yes the pain was tremendous. Yes I was not in my happy place. Yes the transfer from the stretcher to my room for the next three days was hell on earth (kinda wanted to bite my porter's head off). Yes I hated being connected from a few body parts to machines and tubes. Yes I didn't like the feeling it gave me of being drugged up. Yes the hospital food was Blah (and I did mean to write that with a capital B) but you know what? There were also some great things. My nurses were Fabulous (with a capital F). My sister Camille stayed with me every single minute of those 4 days in the hospital. She tended to me like I have never been tended to. She went above and beyond the call of duty for helping a sister out. The sun was shining. My pillow was non stopped fluffed. I felt the love of close ones. I got a few visits that cheered me up (some expected and some not) but most of all, I made it through. I lost some internal stuff but gained a ton of strength. I did this thing that is tremendously scary, that if I could have, would have run as fast as I could in the opposite direction but I didn't. With my family and friends around me, I faced it and did it. A week and a bit later, I am home, eating, resting, reading, watching probably a tad too much of 'Friends' and smiling a whole lot. All in all, this has been a positive experience. Weird that I can say that but I am.
Next step is to see my oncologist at the end of August to get the pathology results. I am confident, as is she, that everything will be good. She said that everything looked good, so for now, I will go with that and am confident that will be her final words. There may be some weird times ahead with the menopause stuff but so far so good. Nothing to report on so hope that continues. I look forward to my iron levels going up finally, to gaining some energy and from this point on, face each new fear with a straighter back and bigger smile.
Thanks everyone for the support, kind words, flowers, books, DVD's, candy. I could not have done this without all that. I hope that I can somehow repay each and every one of you. How about I try by living each day with a new attitude, new outlook and new energy. I'm gonna be around for a long time so hope that works for ya all.
WHAM! BAM! POW! I did this.
XOXO
Life is full of fun adventures and many milestones. Come join us in all these new discoveries.
Monday, 12 August 2013
Monday, 22 July 2013
Change of plans....
As much of a planner as I am, I have to also understand and come to terms with plans sometimes changing.....and this time they have. Over the last week I have gotten more information that has impacted my decision about my ovaries (to keep of not to keep...). I have once again been rejected by CHEO Genetics for testing. The way they function is they make up a percentage of your increased risk factor dependant on your family medical history, what cancers are present in the family, who had them, how distant a relative are they, how old were they at diagnosis, how old were they when they died, etc. So the number that was generated for me has not changed since I first inquired about testing back in 2010. Even though there is male breast cancer in the family (which I was told male breast cancer is always caused by a mutation) it is too distant from me. Also with mom having ovarian cancer, just one close relative is not enough for them to put you through to testing. They qualify you for testing when two close relatives would have either ovarian, breast or colon. Or they would have qualified me had mom had breast AND ovarian cancer. My cancer, cervical cancer, doesn't change their views or doesn't make them feel I should get tested. I've been having a real hard time fully understanding their concepts on how they accept some, reject some. I am not just someone who has nothing going on asking to get tested for the damn fun of it. I have a particular situation that would probably grant me some sort of peace of mind or a better view of the big picture to help make some pretty serious decisions toward my future. Alas, I was upset, angry, quite angry....but I don't like to hang onto anger for too long so it's passed, and I've accepted.
So here I was, yet again, with a big decision to make. To keep or not to keep. I took a step back, away from the emotional attachment of the memories of 5 years back. I had to look at how I function, what my habits are and what I would be most comfortable with moving forward. The thing was, I had to make a decision but I had to make one knowing I would not be able to go back and be comfortable with that. Menopause is a natural part of life. All women go through it (if we are so lucky to reach that age and continue to live on much later). It is natural. It's been studied. It is manageable. Ovarian cancer is NOT manageable. I think if I decided to keep that one lone little ovary in, to what, avoid some hot flashes and postpone the inevitable for maybe 10 years if I was lucky and then got ovarian cancer, would I regret not having removed it all, knowing I could have done something to avoid the mess of chemo and cancer in another part of my body. Would I be able to live with that? NO. I would not have. I would have kicked myself. I could have done something about it. I could have removed it all and managed menopause. But it would be too late. I can't live with that. So there you have it. Ovaries are getting removed along with all the rest of the kit and kaboodle. In less than two weeks, I will be a post-menopausal woman and I will deal with the changes that come with it one by one. With that decision made, I feel comfortable. I feel at peace with it. I feel ready to take this on (mind you scared shitless nonetheless).
I have 4 days of work left and can barely think straight. I just hope that I don't have any important decisions to make during these last few days cause I am sure I don't make any sense. I am not sleeping much, not thinking about much else than what is around the corner. I don't want August 2nd to get here yet I can't wait for August 2nd to get here. See, told ya I am not making sense of things.....
So here I was, yet again, with a big decision to make. To keep or not to keep. I took a step back, away from the emotional attachment of the memories of 5 years back. I had to look at how I function, what my habits are and what I would be most comfortable with moving forward. The thing was, I had to make a decision but I had to make one knowing I would not be able to go back and be comfortable with that. Menopause is a natural part of life. All women go through it (if we are so lucky to reach that age and continue to live on much later). It is natural. It's been studied. It is manageable. Ovarian cancer is NOT manageable. I think if I decided to keep that one lone little ovary in, to what, avoid some hot flashes and postpone the inevitable for maybe 10 years if I was lucky and then got ovarian cancer, would I regret not having removed it all, knowing I could have done something to avoid the mess of chemo and cancer in another part of my body. Would I be able to live with that? NO. I would not have. I would have kicked myself. I could have done something about it. I could have removed it all and managed menopause. But it would be too late. I can't live with that. So there you have it. Ovaries are getting removed along with all the rest of the kit and kaboodle. In less than two weeks, I will be a post-menopausal woman and I will deal with the changes that come with it one by one. With that decision made, I feel comfortable. I feel at peace with it. I feel ready to take this on (mind you scared shitless nonetheless).
I have 4 days of work left and can barely think straight. I just hope that I don't have any important decisions to make during these last few days cause I am sure I don't make any sense. I am not sleeping much, not thinking about much else than what is around the corner. I don't want August 2nd to get here yet I can't wait for August 2nd to get here. See, told ya I am not making sense of things.....
Friday, 12 July 2013
A few lines from the book I am reading....
'For One More Day' by Mitch Albom
Page 172-
I hope you never hear those words. Your mom. She died. They are different than other words. They are too big to fit in your ears. They belong to some strange, heavy, powerful language that pounds away at the side of your head, a wrecking ball coming at you again and again, until finally, the words crack a hole large enough to fit inside your brain. And in so doing, they split you apart. ...
It's been that kind of day....
Page 172-
I hope you never hear those words. Your mom. She died. They are different than other words. They are too big to fit in your ears. They belong to some strange, heavy, powerful language that pounds away at the side of your head, a wrecking ball coming at you again and again, until finally, the words crack a hole large enough to fit inside your brain. And in so doing, they split you apart. ...
It's been that kind of day....
Sunday, 7 July 2013
The latest....not necessarily the greatest....
This week was a busy week. This week was an intense week. This week felt very hard and I felt I had to make one of those hard life decisions that you just don't know you are making quite the best decision...this being said, I feel as good as I can with my decision and feel I made the best one for this time in my life and based on the information I do have at this time.
Wednesday I had a full abdominal and pelvic ultrasound. This was done to look at all the organs (pancreas, liver, bladder, gallbladder) as well as to check in on my kidneys....if you read my previous post, you'll understand my excitement when I announce.....I have two kidneys, and two functional kidneys. Pretty thrilling. Yes I am hanging on to every ounce of good news at this point. All looks well from what they can see, although they find my uterus is quite larger than the normal uterus. There I go again needing to be different in one way or another. LOL.
My decision: I have chosen, with the support of my oncologist, to keeping in one ovary until I have more genetic information. I just feel better knowing that if the genetic information comes back stating a mutation, that I can still do something about it, and I would very quickly. But if the genetics came back saying all looks well, no mutation is present, then I would be glad to not have to face menopause until naturally started (hopefully in my late 40's, or early 50's).
So surgery is scheduled: Friday, August 2nd. It's quick but I guess this is a good sign. Genetics is now trying to get me in ASAP but nothing is guaranteed. The surgery will remove cervix, uterus, both fallopian tubes and one ovary. My doctor will decide which ovary looks the healthiest and remove the other. Of course there is a possibility that she does feel the need to remove both and I leave that call to her, being the expert and all. Hopefully I will get in to speak with the menopause specialist next week in case it does happen. The surgery will be quite intense and so will recovery seeing as the incision was decided as a vertical one. The reason I was given is because of the large uterus, they need to get a good look to see what is going on in there and if they do a bikini line incision, it`s hard to get a good look. All for the best. The way I am looking at this is that the scar will represent survival. It may take me a while to completely accept such a huge scar on my stomach but will hopefully reach a point of thinking that way. Because of this surgery, I will have been given the chance to a longer life, more years with my gorgeous husband, to see my beautiful children grow old, my sisters, dad, my friends....Recovery is a good six weeks, with a slow transition back to work. I have to say I am blessed with having such great support at work as well as I will feel some guilt no matter what with being away for so long. But hopefully I will come back stronger, more resilient, more energized.
I`m nervous, I`m excited to get the show on the road. There are still lots of questions going on in my head but that is just my nature. I question everything and the answers, as scary as they can sometimes be, bring me comfort. I feel supported by my team of doctors and they have encouraged my questions and my curiosity. Dealing with specialists is quite different than just dealing with family practitioners (although I have also been blessed with the best family doctor). You really feel that a small team has been formed, with you being a part of it, to reach a common goal.
So for now I have 3 weeks of work left, with a few appointments in there, while trying to keep calm and grounded. I`ll keep you posted on anything new from now until surgery day, and of course touch base once I am back home which will be between 3 and 5 days post surgery. If you know me, 6 weeks of resting will be quite challenging. If you want to come and keep me entertained, touch base. I am sure that at some point, I will be craving some company, some stories, gossip and laughter. Just hope the laughing doesn't hurt my belly too much. I cannot not giggle at least once in a day.
Now to start decreasing my coffee intake to avoid the massive headache I had some withdrawal at the last surgery.
XOXO
“You can't make decisions based on fear and the possibility of what might happen.”
― Michelle Obama
Wednesday I had a full abdominal and pelvic ultrasound. This was done to look at all the organs (pancreas, liver, bladder, gallbladder) as well as to check in on my kidneys....if you read my previous post, you'll understand my excitement when I announce.....I have two kidneys, and two functional kidneys. Pretty thrilling. Yes I am hanging on to every ounce of good news at this point. All looks well from what they can see, although they find my uterus is quite larger than the normal uterus. There I go again needing to be different in one way or another. LOL.
My decision: I have chosen, with the support of my oncologist, to keeping in one ovary until I have more genetic information. I just feel better knowing that if the genetic information comes back stating a mutation, that I can still do something about it, and I would very quickly. But if the genetics came back saying all looks well, no mutation is present, then I would be glad to not have to face menopause until naturally started (hopefully in my late 40's, or early 50's).
So surgery is scheduled: Friday, August 2nd. It's quick but I guess this is a good sign. Genetics is now trying to get me in ASAP but nothing is guaranteed. The surgery will remove cervix, uterus, both fallopian tubes and one ovary. My doctor will decide which ovary looks the healthiest and remove the other. Of course there is a possibility that she does feel the need to remove both and I leave that call to her, being the expert and all. Hopefully I will get in to speak with the menopause specialist next week in case it does happen. The surgery will be quite intense and so will recovery seeing as the incision was decided as a vertical one. The reason I was given is because of the large uterus, they need to get a good look to see what is going on in there and if they do a bikini line incision, it`s hard to get a good look. All for the best. The way I am looking at this is that the scar will represent survival. It may take me a while to completely accept such a huge scar on my stomach but will hopefully reach a point of thinking that way. Because of this surgery, I will have been given the chance to a longer life, more years with my gorgeous husband, to see my beautiful children grow old, my sisters, dad, my friends....Recovery is a good six weeks, with a slow transition back to work. I have to say I am blessed with having such great support at work as well as I will feel some guilt no matter what with being away for so long. But hopefully I will come back stronger, more resilient, more energized.
I`m nervous, I`m excited to get the show on the road. There are still lots of questions going on in my head but that is just my nature. I question everything and the answers, as scary as they can sometimes be, bring me comfort. I feel supported by my team of doctors and they have encouraged my questions and my curiosity. Dealing with specialists is quite different than just dealing with family practitioners (although I have also been blessed with the best family doctor). You really feel that a small team has been formed, with you being a part of it, to reach a common goal.
So for now I have 3 weeks of work left, with a few appointments in there, while trying to keep calm and grounded. I`ll keep you posted on anything new from now until surgery day, and of course touch base once I am back home which will be between 3 and 5 days post surgery. If you know me, 6 weeks of resting will be quite challenging. If you want to come and keep me entertained, touch base. I am sure that at some point, I will be craving some company, some stories, gossip and laughter. Just hope the laughing doesn't hurt my belly too much. I cannot not giggle at least once in a day.
Now to start decreasing my coffee intake to avoid the massive headache I had some withdrawal at the last surgery.
XOXO
“You can't make decisions based on fear and the possibility of what might happen.”
― Michelle Obama
Friday, 28 June 2013
To keep or not to keep....
So if you read the previous post, I had met with my oncologist post surgery 3 weeks ago and was told they believed they removed all the cancerous tissue but she needed to meet with her pathology team to discuss results in further detail. Well they met, they discussed and I went back in to chat with my oncologist yesterday....I ended up going alone to this appointment and really not thinking much of it as we already knew the outcome and the steps ahead....Note to self, always bring another adult in tow to help balance the thought processes required with these types of appointments. You never know what curve balls they may be throwing at you...
Steps ahead remain the same with some slight tweeks....The surgery will now be done by the oncology team instead of the run of the mill gynecologist. So, as excited as I was to finally have managed to get that appointment booked with the gynecologist, it is now going to be cancelled. Honestly, one less doctor involved in my case is fine by me. Explaining and repeating is beginning to be exhausting. So what I need to do now and by next Thursday when I will go back yet again to chat with my oncologist is....to keep my ovaries or to have them removed when they will go in to remove the cervix, uterus, fallopian tubes. If you are thinking "why not? What's the big deal", well to me, it is a big deal. Menopause at 38 is not my idea of fun, ideal or the best option, or the only option for that matter. I was hoping to get some genetic testing done prior to having to make this decision but the feeling of my doctor is to not wait too long and to get this done. Also to add to the mix of things, I now have to look into the status of my kidneys. Surprise! I have a malformation of the uterus which I've known for years but one fun fact associated with this malformation is not only the interesting shape of the uterus but that you can sometimes only have one kidney, you can have two kidneys but only one functional kidney, or you could have two kidneys but one is not where it is supposed to be. So they need this information going forward. If I only have one functional kidney, that is fine and you can live out your whole life without any problems but could be interesting to say the least should it eventually chose to fail. Fun times. Fun times. That ultrasound is next Wednesday and comes with the fun of fasting for 6 hours and the appointment is mid-afternoon. My stomach, which already tends to get loud when hungry, will for sure be growling like a grizzly by 2pm.
As for the genetics testing, I had both my oncologist paging her counterpart in genetics to try and get me seen quickly, her assistant also on the phone with her colleague at CHEO Genetics to see about getting me in...so I know I am being cared for. What I was told is that I need to go ahead and start the process with or without the genetic info. Yikes.
So here are my options to consider:
Option 1 - sign consent form agreeing to have the ovaries removed with the rest of the 'kit' and be done with it. Then deal with the menopause stuff....
Option 2 - sign consent form with stipulation that they will keep one of my ovaries in, simply so I do not go into premature menopause. Then once I have genetic testing, if I have a mutation in BRCA1 and BRCA2, then go back under the knife to have the last ovary removed. (yes it's an extra surgery but the way I see it, if I do not have a mutation, then my quality of life at this point would be much better with not going through all the fun stuff associated with early menopause).
Option 3 - take a chance and postpone the whole hysterectomy until I have more genetic information. Risk here is that cancer cells begin to grow again and then who knows what repercussion that would bring.
All this being said, I'm not looking for guidance or advice or points of view but am primarily writing this as a promise to keep you all informed on the developments in my situation. Also I am writing this down as it is helping me clear my brain and will in turn help me come to a decision that I will feel comfortable with, no matter the outcome. This is my life, my body and I don't take these decisions lightly and will make what is right for me. Might not be for you and you or you, but it is for me. I have had wonderful guidance from my team of specialist, great advice and know that I am supported in whichever decision I chose to make. The support I have had from all my friends, family, colleagues to date has been so great I can't even begin to explain. It means a lot to have you all there in whichever way you are and I thank you for that.
So...to keep or not to keep....until next week my friends.....
XOXO
Steps ahead remain the same with some slight tweeks....The surgery will now be done by the oncology team instead of the run of the mill gynecologist. So, as excited as I was to finally have managed to get that appointment booked with the gynecologist, it is now going to be cancelled. Honestly, one less doctor involved in my case is fine by me. Explaining and repeating is beginning to be exhausting. So what I need to do now and by next Thursday when I will go back yet again to chat with my oncologist is....to keep my ovaries or to have them removed when they will go in to remove the cervix, uterus, fallopian tubes. If you are thinking "why not? What's the big deal", well to me, it is a big deal. Menopause at 38 is not my idea of fun, ideal or the best option, or the only option for that matter. I was hoping to get some genetic testing done prior to having to make this decision but the feeling of my doctor is to not wait too long and to get this done. Also to add to the mix of things, I now have to look into the status of my kidneys. Surprise! I have a malformation of the uterus which I've known for years but one fun fact associated with this malformation is not only the interesting shape of the uterus but that you can sometimes only have one kidney, you can have two kidneys but only one functional kidney, or you could have two kidneys but one is not where it is supposed to be. So they need this information going forward. If I only have one functional kidney, that is fine and you can live out your whole life without any problems but could be interesting to say the least should it eventually chose to fail. Fun times. Fun times. That ultrasound is next Wednesday and comes with the fun of fasting for 6 hours and the appointment is mid-afternoon. My stomach, which already tends to get loud when hungry, will for sure be growling like a grizzly by 2pm.
As for the genetics testing, I had both my oncologist paging her counterpart in genetics to try and get me seen quickly, her assistant also on the phone with her colleague at CHEO Genetics to see about getting me in...so I know I am being cared for. What I was told is that I need to go ahead and start the process with or without the genetic info. Yikes.
So here are my options to consider:
Option 1 - sign consent form agreeing to have the ovaries removed with the rest of the 'kit' and be done with it. Then deal with the menopause stuff....
Option 2 - sign consent form with stipulation that they will keep one of my ovaries in, simply so I do not go into premature menopause. Then once I have genetic testing, if I have a mutation in BRCA1 and BRCA2, then go back under the knife to have the last ovary removed. (yes it's an extra surgery but the way I see it, if I do not have a mutation, then my quality of life at this point would be much better with not going through all the fun stuff associated with early menopause).
Option 3 - take a chance and postpone the whole hysterectomy until I have more genetic information. Risk here is that cancer cells begin to grow again and then who knows what repercussion that would bring.
All this being said, I'm not looking for guidance or advice or points of view but am primarily writing this as a promise to keep you all informed on the developments in my situation. Also I am writing this down as it is helping me clear my brain and will in turn help me come to a decision that I will feel comfortable with, no matter the outcome. This is my life, my body and I don't take these decisions lightly and will make what is right for me. Might not be for you and you or you, but it is for me. I have had wonderful guidance from my team of specialist, great advice and know that I am supported in whichever decision I chose to make. The support I have had from all my friends, family, colleagues to date has been so great I can't even begin to explain. It means a lot to have you all there in whichever way you are and I thank you for that.
So...to keep or not to keep....until next week my friends.....
XOXO
Thursday, 6 June 2013
And the verdict is...
In short, no radiation or chemo needed at this time, and hopefully ever. Woot woot.
The longer version is that the cancer is exactly where they anticipated it to be. It's microinvasive meaning it's at such an early stage that there is no visible tumour. They won't even stage it at this point. I had a patch of 6 mm x 1mm of cancer tissue on one side of the cervix. The uterus is clear. They feel confident that it was all removed by the surgery I had in April. The recommended course of action is still a full hysterectomy to be done sooner rather than later. I might get more information though when I head back to see her in 3 weeks in which she will have met with her pathology team to discuss the itty-bitty details.
The Team of Experts behind my recovery
During this time, I will be referred to the gynecologist that will be performing the hysterectomy to discuss the surgery approach as well as then booking this in. From what she was saying, it could be anytime from now until the early Fall. The oncologist team won't do the surgery themselves because in their gyne-cancer world, I am not sick enough which would result in my constantly getting bumped - which is music to my ears. Therefore the run of the mill gynecologist will do. They are recommending me for a radical which means the whole kit and kaboodle (cervix, uterus, fallopian tubes, ovaries).
Also in the mean time, I am being referred to CHEO Genetics, once again, to get genetic testing to find out about any gene mutations that could cause other cancers such as ovarian/breast. Some of you know that a year back, I tried to get genetic testing to see if I had the gene mutation BRCA1 or BRCA2 which heightens your chances of ever developing breast cancer and ovarian cancer and because of the full family history, I was not considered at that much more of a risk than the general public of developing these types of cancers. Well, now with these developments to my own health, it is recommended to find out if a mutation is present and then we will have more information moving forward. Even with a radical hysterectomy, you could still develop cancers such as peritoneal which my mom had in the end (and is not a pleasant or positive one). So having this piece of info will be good for me to have, as well as my family/kids.
And eventually, I will have to be referred to a menopausal specialist/counselor to discuss all the complications that can arise from early menopause and also any plan on treatment or hormone therapy. I don't know too much about this stuff so this will be informative. Apparently there are great options that are not hormone or drug related to helping to regulate all that side of things. Guess I will have to learn all this stuff.
So today was exhausting. It was jam-packed with information. Some of it made sense, some of it not. Above is a summary of the conversations and I think i've captured it as best I can. What stuck with me the most is NO TREATMENTS AT THIS TIME. I'm a little confused about having to see her again in three weeks once she's met with her pathology team. Not sure if it means that it could change the recommended path forward but for now I am going with what was told to me today.
The after effects
I am tired. I am overwhelmed. I am relieved. I am dazed. I am confused. I am glad today is over with. Now there are other things I will have to wait on as well as other health matters I will have to focus on, i.e. being the iron deficiency which my doctor is still confused about. I had started a course of getting iron injections but that is currently on hold. I had a first test dose, which made me very ill for a few hours, then a second test dose which did the same with the added effect of almost passing out. After a discussion with the doc and her having gotten advice from a clinical pharmacist, the passing out and extreme exhaustion is not from the iron injections. Now what! So the injections are on hold and we are now seeking options as to what could be causing me the need to sleep for 15 hours and still need to sleep more and more and more....First option is possibility of having celiac disease (gluten allergy). Blood work has been done yesterday so we shall see if this is the cause or if we scratch that off the list and move on to the next possible culprit. I am so fascinated by health and our bodies but yet am so frustrated by it. What keeps me going and being positive through this all is the great support system I have around me. I have the greatest friends and the greatest family who are there to listen to me complain, to come when I call, to bitch at me when I over do it with chores or activities that make me feel normal (i.e scrubbing my carpets clean with a small brush on my hands and knees for 4 hours straight - tee hee, oh and removing all my window screens and spraying them clean and vacuuming my blinds - oh snap, you didn't know about that one). All this to say, I am blessed. I am well surrounded. I am happy. I am loved. It could be worse. It always could. I see so many positives in this situation it's unreal. Weird, ya I know. But if you've known me for a while, you've also always known I've been somewhat weird. Come on now, couldn't well end this being all serious now could I?
Thanks for listening (reading). You guys all rock!!!!
The longer version is that the cancer is exactly where they anticipated it to be. It's microinvasive meaning it's at such an early stage that there is no visible tumour. They won't even stage it at this point. I had a patch of 6 mm x 1mm of cancer tissue on one side of the cervix. The uterus is clear. They feel confident that it was all removed by the surgery I had in April. The recommended course of action is still a full hysterectomy to be done sooner rather than later. I might get more information though when I head back to see her in 3 weeks in which she will have met with her pathology team to discuss the itty-bitty details.
The Team of Experts behind my recovery
During this time, I will be referred to the gynecologist that will be performing the hysterectomy to discuss the surgery approach as well as then booking this in. From what she was saying, it could be anytime from now until the early Fall. The oncologist team won't do the surgery themselves because in their gyne-cancer world, I am not sick enough which would result in my constantly getting bumped - which is music to my ears. Therefore the run of the mill gynecologist will do. They are recommending me for a radical which means the whole kit and kaboodle (cervix, uterus, fallopian tubes, ovaries).
Also in the mean time, I am being referred to CHEO Genetics, once again, to get genetic testing to find out about any gene mutations that could cause other cancers such as ovarian/breast. Some of you know that a year back, I tried to get genetic testing to see if I had the gene mutation BRCA1 or BRCA2 which heightens your chances of ever developing breast cancer and ovarian cancer and because of the full family history, I was not considered at that much more of a risk than the general public of developing these types of cancers. Well, now with these developments to my own health, it is recommended to find out if a mutation is present and then we will have more information moving forward. Even with a radical hysterectomy, you could still develop cancers such as peritoneal which my mom had in the end (and is not a pleasant or positive one). So having this piece of info will be good for me to have, as well as my family/kids.
And eventually, I will have to be referred to a menopausal specialist/counselor to discuss all the complications that can arise from early menopause and also any plan on treatment or hormone therapy. I don't know too much about this stuff so this will be informative. Apparently there are great options that are not hormone or drug related to helping to regulate all that side of things. Guess I will have to learn all this stuff.
So today was exhausting. It was jam-packed with information. Some of it made sense, some of it not. Above is a summary of the conversations and I think i've captured it as best I can. What stuck with me the most is NO TREATMENTS AT THIS TIME. I'm a little confused about having to see her again in three weeks once she's met with her pathology team. Not sure if it means that it could change the recommended path forward but for now I am going with what was told to me today.
The after effects
I am tired. I am overwhelmed. I am relieved. I am dazed. I am confused. I am glad today is over with. Now there are other things I will have to wait on as well as other health matters I will have to focus on, i.e. being the iron deficiency which my doctor is still confused about. I had started a course of getting iron injections but that is currently on hold. I had a first test dose, which made me very ill for a few hours, then a second test dose which did the same with the added effect of almost passing out. After a discussion with the doc and her having gotten advice from a clinical pharmacist, the passing out and extreme exhaustion is not from the iron injections. Now what! So the injections are on hold and we are now seeking options as to what could be causing me the need to sleep for 15 hours and still need to sleep more and more and more....First option is possibility of having celiac disease (gluten allergy). Blood work has been done yesterday so we shall see if this is the cause or if we scratch that off the list and move on to the next possible culprit. I am so fascinated by health and our bodies but yet am so frustrated by it. What keeps me going and being positive through this all is the great support system I have around me. I have the greatest friends and the greatest family who are there to listen to me complain, to come when I call, to bitch at me when I over do it with chores or activities that make me feel normal (i.e scrubbing my carpets clean with a small brush on my hands and knees for 4 hours straight - tee hee, oh and removing all my window screens and spraying them clean and vacuuming my blinds - oh snap, you didn't know about that one). All this to say, I am blessed. I am well surrounded. I am happy. I am loved. It could be worse. It always could. I see so many positives in this situation it's unreal. Weird, ya I know. But if you've known me for a while, you've also always known I've been somewhat weird. Come on now, couldn't well end this being all serious now could I?
Thanks for listening (reading). You guys all rock!!!!
Saturday, 25 May 2013
Helllooooo
Here I am. Sorry for the hiatus. But no news is good news right? Well it is. I haven't had any developments in the health side of things since my last post. Well maybe a few but I'm here now so will explain.
On going issue...
I have had iron deficiency issues for years and years now and although I have been injesting copious amounts of iron pills, nothing is happening. My levels remain rock bottom low. We have tried a few things to perhaps help this iron absorbancy issue along the way but alas, nothing worked. So we have decided to go the route of iron injections. Last week was my first test dose to see how I would react.....all day, not so bad. Wake up at midnight with the most intense stomach pains and nausea. So pop the Gravol, wait thirty minutes for it to take its effect and then ahhhhhh, all better and now I can sleep. My doctor was shocked by my reaction seeing as i'd already been taking so much iron for years that she didn't seem to anticipate some of the side effects that some can have, i.e. nausea. So instead of sending me for my first full dose, sent me yesterday for a second test dose. Instead of waiting for the nausea wake-up, I went to bed with two Gravol in my body. I slept like a rock....but today, some nausea and well, almost passed out. So today is dizziness. Argh. Not a fun feeling. But thankfully the kids have both been dropped off at a birthday party so I can rest (after a tad bit of cleaning of course). I guess the lesson is to make sure I get my shots on Fridays so I can have the weekend to let the reactions happen and not be at work and have to have my co-workers pick me off the floor. I'll be getting an iron shot every two weeks for ten injections. Then we'll test my ferretin levels to see where they stand.
Music to my ears....
Thursday night of this past week, I had a wonderful experience that once again reminded me how lucky I am and how beautiful and rich my life is. My sister Camille, who works at the National Arts Center managed to get 4 tickets in row C to see the NAC Orchestra perform the music of Led Zeppelin. So the four Crôteau sisters met for a dinner at Le Café ahead of the performance and as usual, we giggled our way through dinner. And the show....OMG is pretty much all I can say about it. It was really really good. I am a fan of Zeppelin since I was at least 12 years old, but more so in my mid-teens where my room had posters of some album covers and had the music blaring from it's walls. They played so many tunes that brought back nothing but good memories. The arrangements were fantastic, the music went through my body and I found myself listening with the biggest grin on my face, not just because the music was great, but because there I was, sitting uber close to the stage with three of my favorite people in this world. Those are the moments you live for in life. Those are the moments we need to hang onto. Those are the moments that make us truly wealthy. Those are the moments that balance out all the not-so-good stuff we all have to go through at some point in life. Those are the moments that make everything OK. So going to the show was not just an experience to see a great orchestra perform some of my all time favorite tunes, it was an experience that made me feel like the luckiest gal out there regardless of what may be to come.
And now we wait....
For those wondering where things stand now, well we wait. The next appointment with the oncologist is June 6th where I will have a better idea of what lies ahead, whether it be treatments or not, and how to proceed with surgery. How do I feel about it all? Positive still, although I won't lie, the waiting is killing me and playing tricks on my mind, especially moments where I am not so busy or late at night while laying alone in the dark. Every ache makes me worry. I worry about whether after beating this one, whether something else would invade my body seeing as it now feels vulnerable. You always hear of 'so-and-so beat cancer #1 but died of cancer #2 that came years later'. I worry about whether I am resting enough, too much, not taking the daily things the right way. As much as I want to remain in a state of normalcy, continue to proceed day by day the same as any other, I can't help but wish I could be home, taking things slow, resting up the body, resting up the mind, perhaps doing some yoga to keep the body somewhat strong and giving my kids and hubby my full energy and attention until this is all done. I am normal but I am not. My mind drifts a lot through the day, I don't feel I am proceeding to my full potential at work and those who know me know I don't like being mediocre. But I continue to try and hope to stay afloat. The bills need to be paid right.....sigh!
I'll update next after my appointment so stay tuned. Fingers crossed for nothing but good.
XOX
On going issue...
I have had iron deficiency issues for years and years now and although I have been injesting copious amounts of iron pills, nothing is happening. My levels remain rock bottom low. We have tried a few things to perhaps help this iron absorbancy issue along the way but alas, nothing worked. So we have decided to go the route of iron injections. Last week was my first test dose to see how I would react.....all day, not so bad. Wake up at midnight with the most intense stomach pains and nausea. So pop the Gravol, wait thirty minutes for it to take its effect and then ahhhhhh, all better and now I can sleep. My doctor was shocked by my reaction seeing as i'd already been taking so much iron for years that she didn't seem to anticipate some of the side effects that some can have, i.e. nausea. So instead of sending me for my first full dose, sent me yesterday for a second test dose. Instead of waiting for the nausea wake-up, I went to bed with two Gravol in my body. I slept like a rock....but today, some nausea and well, almost passed out. So today is dizziness. Argh. Not a fun feeling. But thankfully the kids have both been dropped off at a birthday party so I can rest (after a tad bit of cleaning of course). I guess the lesson is to make sure I get my shots on Fridays so I can have the weekend to let the reactions happen and not be at work and have to have my co-workers pick me off the floor. I'll be getting an iron shot every two weeks for ten injections. Then we'll test my ferretin levels to see where they stand.
Music to my ears....
Thursday night of this past week, I had a wonderful experience that once again reminded me how lucky I am and how beautiful and rich my life is. My sister Camille, who works at the National Arts Center managed to get 4 tickets in row C to see the NAC Orchestra perform the music of Led Zeppelin. So the four Crôteau sisters met for a dinner at Le Café ahead of the performance and as usual, we giggled our way through dinner. And the show....OMG is pretty much all I can say about it. It was really really good. I am a fan of Zeppelin since I was at least 12 years old, but more so in my mid-teens where my room had posters of some album covers and had the music blaring from it's walls. They played so many tunes that brought back nothing but good memories. The arrangements were fantastic, the music went through my body and I found myself listening with the biggest grin on my face, not just because the music was great, but because there I was, sitting uber close to the stage with three of my favorite people in this world. Those are the moments you live for in life. Those are the moments we need to hang onto. Those are the moments that make us truly wealthy. Those are the moments that balance out all the not-so-good stuff we all have to go through at some point in life. Those are the moments that make everything OK. So going to the show was not just an experience to see a great orchestra perform some of my all time favorite tunes, it was an experience that made me feel like the luckiest gal out there regardless of what may be to come.
And now we wait....
For those wondering where things stand now, well we wait. The next appointment with the oncologist is June 6th where I will have a better idea of what lies ahead, whether it be treatments or not, and how to proceed with surgery. How do I feel about it all? Positive still, although I won't lie, the waiting is killing me and playing tricks on my mind, especially moments where I am not so busy or late at night while laying alone in the dark. Every ache makes me worry. I worry about whether after beating this one, whether something else would invade my body seeing as it now feels vulnerable. You always hear of 'so-and-so beat cancer #1 but died of cancer #2 that came years later'. I worry about whether I am resting enough, too much, not taking the daily things the right way. As much as I want to remain in a state of normalcy, continue to proceed day by day the same as any other, I can't help but wish I could be home, taking things slow, resting up the body, resting up the mind, perhaps doing some yoga to keep the body somewhat strong and giving my kids and hubby my full energy and attention until this is all done. I am normal but I am not. My mind drifts a lot through the day, I don't feel I am proceeding to my full potential at work and those who know me know I don't like being mediocre. But I continue to try and hope to stay afloat. The bills need to be paid right.....sigh!
I'll update next after my appointment so stay tuned. Fingers crossed for nothing but good.
XOX
Friday, 3 May 2013
Being Taurus
Being a Taurus is quite great, especially in May. It means it's my birthday very soon. 38 and proud. I normally don't get thrilled or crazy about my birthday but for some reason, this year I am looking forward to it. Another year to celebrate with those I love. Why should we be scared or sad to climb one number higher on the age scale. I will squeal with each new number from this point on. That is my new measure of success. Another year means more hugs, more laughs, more time with friends and family, more time with my husband and kidlets (XOXO) and more time doing my best at enjoying all the beautiful things around me.
Back to being a Taurus. According to one site, Tauruses are stable, balanced, conservative good, law-abiding citizens and lovers of peace, possessing all the best qualities of the bourgeoisie. Tauruses are gentle, even tempered, good natured, modest and slow to anger, disliking quarreling and avoiding ill-feeling. Equally unexpected are their occasional sallies into humor and exhibitions of fun. Another site says: Taurus is a Fixed Earth sign, ruled by Venus. As the second sign in the zodiac, the Taurus individual is a stable, conservative, home-loving individual who will always make a loyal friend or partner. So now for the bad...And oh yes, lest we forget, the Taurus individual is stubborn - the most stubborn of all the zodiac signs. Once he forms an opinion, he is immovable, and nothing will change his mind. If they are provoked, however, they can explode into violent outbursts of ferocious anger in which they seem to lose all self-control. LOL. You don't say. Stubborn? I didn't know about this aspect of my zodiac sign....well, maybe a touch, in certain circumstances, far and few between.....not convincing you aren't I. OK, OK so I am stubborn. Which is probably why after all my family's pleas to stay home the WHOLE week and rest up, I decided it was wise to head back to work on Wednesday, a mere 6 days after having surgery for removing cancer from my body. Why not. I felt good. I felt rested. I missed my co-workers. I felt I had a responsibility. Felt I had something to prove. Felt that some others have it worse and move on still. Felt guilty for laying so much in bed. Just felt ready....but like the saying goes: one step forward, two steps back. And two steps is what I have taken back. I lasted at work on Wednesday until 2pm. I should have left by noon had I been listening to my body (and parts of my brain telling me to go). I didn't though. So Wednesday night put me back where I started. Weak, exhausted, swollen, sore and in bed. Thursday, some of the same. Today, yup no change. So here I am at home still, sitting in my stretch pants (no moo-moo yet), my heated bean bag on my abdomen, warm coffee, Sarah McLachlan on the Bose and plans of resting up. As stubborn as I can be and thinking I can do it all, I am stepping back. I guess even Superwoman goes on the occasional vacay. So I look forward to this evening, having my lovely sister Julie cook me dinner, help with the kids and sleep over to keep me company and help out (and sure she is also coming to keep an eye on me and have her finger ready to wag in my direction should I try to do something more than I should be doing).
Sigh.....
Back to being a Taurus. According to one site, Tauruses are stable, balanced, conservative good, law-abiding citizens and lovers of peace, possessing all the best qualities of the bourgeoisie. Tauruses are gentle, even tempered, good natured, modest and slow to anger, disliking quarreling and avoiding ill-feeling. Equally unexpected are their occasional sallies into humor and exhibitions of fun. Another site says: Taurus is a Fixed Earth sign, ruled by Venus. As the second sign in the zodiac, the Taurus individual is a stable, conservative, home-loving individual who will always make a loyal friend or partner. So now for the bad...And oh yes, lest we forget, the Taurus individual is stubborn - the most stubborn of all the zodiac signs. Once he forms an opinion, he is immovable, and nothing will change his mind. If they are provoked, however, they can explode into violent outbursts of ferocious anger in which they seem to lose all self-control. LOL. You don't say. Stubborn? I didn't know about this aspect of my zodiac sign....well, maybe a touch, in certain circumstances, far and few between.....not convincing you aren't I. OK, OK so I am stubborn. Which is probably why after all my family's pleas to stay home the WHOLE week and rest up, I decided it was wise to head back to work on Wednesday, a mere 6 days after having surgery for removing cancer from my body. Why not. I felt good. I felt rested. I missed my co-workers. I felt I had a responsibility. Felt I had something to prove. Felt that some others have it worse and move on still. Felt guilty for laying so much in bed. Just felt ready....but like the saying goes: one step forward, two steps back. And two steps is what I have taken back. I lasted at work on Wednesday until 2pm. I should have left by noon had I been listening to my body (and parts of my brain telling me to go). I didn't though. So Wednesday night put me back where I started. Weak, exhausted, swollen, sore and in bed. Thursday, some of the same. Today, yup no change. So here I am at home still, sitting in my stretch pants (no moo-moo yet), my heated bean bag on my abdomen, warm coffee, Sarah McLachlan on the Bose and plans of resting up. As stubborn as I can be and thinking I can do it all, I am stepping back. I guess even Superwoman goes on the occasional vacay. So I look forward to this evening, having my lovely sister Julie cook me dinner, help with the kids and sleep over to keep me company and help out (and sure she is also coming to keep an eye on me and have her finger ready to wag in my direction should I try to do something more than I should be doing).
Sigh.....
Tuesday, 30 April 2013
This life we are given
While at the bus stop this morning waiting for the kids to be off to school, I was told very briefly of a story by one of the moms there. Her friend at the age of 28 was diagnosed with the same cancer as me and underwent the same surgery and then a total hysterectomy as well as some treatments. Five years past and she is doing Iron Man competitions. Now seriously, that is someone who was faced with a challenging time and came out of it stronger and more positive I imagine than she was before. She had not yet had children so that choice was also taken away from her and she came through it. WOW. You know what I call that? A Super Woman. They are everywhere and they inspire me.
We don't choose the challenges we end up facing in life, well for the most part anyway, but with hard work, a whole lot of heart, and support from family and friends, we can overcome most of them. And when we come out at the end, we find ourselves stronger. Those challenges make us who we are. Would I rather not be faced with this challenge? Well that's a silly question...but what I do know is that the Adèle that will come out of it at the end will be the same Adèle as I am now, with a tad more pride, a lot healthier, more strength and a bit more of a feeling that I CAN handle much more than I ever thought possible. Like every single person on this earth, I have already gone through many rock bottom moments, situations I wish I could somehow erase from my past. But in a way, had those situations not happened, I would not be who I am today. And I am quite proud of who I have become. My mom was proud and I am sure continues to be proud as she looks down on me and smiles. My father is proud and I see it in his smile every time he is over and I felt it in his touch as he squeezed my hand before surgery. My sisters are proud.
I know this won't be the last challenge that will come my way in life. There will be many more as I grow old and grey (and yes you aren't rid of me for a long while....I will be old, grey, and possibly start wearing moo-moos one day). And in future challenges I will allow myself the time to be sad, have a few moments of self-pity, cry some, then pull up my sock and head forward with my head held high and know that I WILL come out of it.
For those wanting the recovery update, I am doing great. I have moments of cramping, weakness, a tad bit of dizziness but overall am quite good. Note to self: stay on top of pain medication plan. Forgoing them on day two of recovery is NOT a good idea. I had a great team of helpers (thank you to my sisters Camille, Manon, Julie, to my handsome husband Randy, my wonderful father Simon and his spouse Sandy). I know I am stubborn and have a hard time of letting go of my household duties and chores, but know that I didn't push myself too much and that moving around a bit did help in my recovery. I will pull back when I need it and I am getting better at asking for help don't you think? Yes? Argh, OK, I still need help in that department.
So tomorrow is back to work - business as usual...with a bit more pain and medication. I am relunctant to head back so soon cause it's not just the body that needs adjusting to this situation but the brain, but quite excited to head back and feel 'normal', feel like part of the team and touch base with my great team at work. Essentially heading back to work is heading to a group of friends where I feel supported, watched over and loved.
Ready or not, here I come.
We don't choose the challenges we end up facing in life, well for the most part anyway, but with hard work, a whole lot of heart, and support from family and friends, we can overcome most of them. And when we come out at the end, we find ourselves stronger. Those challenges make us who we are. Would I rather not be faced with this challenge? Well that's a silly question...but what I do know is that the Adèle that will come out of it at the end will be the same Adèle as I am now, with a tad more pride, a lot healthier, more strength and a bit more of a feeling that I CAN handle much more than I ever thought possible. Like every single person on this earth, I have already gone through many rock bottom moments, situations I wish I could somehow erase from my past. But in a way, had those situations not happened, I would not be who I am today. And I am quite proud of who I have become. My mom was proud and I am sure continues to be proud as she looks down on me and smiles. My father is proud and I see it in his smile every time he is over and I felt it in his touch as he squeezed my hand before surgery. My sisters are proud.
I know this won't be the last challenge that will come my way in life. There will be many more as I grow old and grey (and yes you aren't rid of me for a long while....I will be old, grey, and possibly start wearing moo-moos one day). And in future challenges I will allow myself the time to be sad, have a few moments of self-pity, cry some, then pull up my sock and head forward with my head held high and know that I WILL come out of it.
For those wanting the recovery update, I am doing great. I have moments of cramping, weakness, a tad bit of dizziness but overall am quite good. Note to self: stay on top of pain medication plan. Forgoing them on day two of recovery is NOT a good idea. I had a great team of helpers (thank you to my sisters Camille, Manon, Julie, to my handsome husband Randy, my wonderful father Simon and his spouse Sandy). I know I am stubborn and have a hard time of letting go of my household duties and chores, but know that I didn't push myself too much and that moving around a bit did help in my recovery. I will pull back when I need it and I am getting better at asking for help don't you think? Yes? Argh, OK, I still need help in that department.
So tomorrow is back to work - business as usual...with a bit more pain and medication. I am relunctant to head back so soon cause it's not just the body that needs adjusting to this situation but the brain, but quite excited to head back and feel 'normal', feel like part of the team and touch base with my great team at work. Essentially heading back to work is heading to a group of friends where I feel supported, watched over and loved.
Ready or not, here I come.
Friday, 26 April 2013
Step one to getting better
WHAM!!! BAM!!! POW!!!!
Round one goes to Adèle. Sucks to be you Cancer!
Yesterday was surgery day. Hence the Superhero references above. And in this round, I won! I did. I had my nice white boxing gloves on (thank you Ryan Gosling) and kicked some serious ASS. I went in strong and came out stronger, albeit a little groggy, sore, stinky, hungry. But the important thing is I came out with less cancer in me, possibly no more cancer in me. Results will let us know what is needed next. A hysterectomy I know is inevitable, put possibly the news of not needing any radiation or other treatments would be just fabulous in my books.
So for those wondering on how the day went, here is a bit more detail. My day started as it does everyday : 5:30am wake-up, get kids lunches packed and bags ready by the door, wake-up kids, dress and feed kids and out the door by 7:15. Then there was coming back home and NOT having coffee. OMG! What a challenge that was. I was allowed one measured cup of water and one of white-cranberry juice. Satisfying - NOT. My escort for the day (dad) came to hang with me for a while before we had to head out the door at 9:45am to head to the Ottawa General Hospital. My given arrival time was 10:30am and we waiting at least an hour in the waiting room before being brought to a room that looked like a gym locker room to dress into a fancy little gown. The room was quite fitting if you think about the fact that you are about to go fight one of the biggest battles of your life. Then you're put into bed in a room full of people awaiting their surgeries. It's a lovely room, space and curtains between the beds. The lights could be dimmed a bit. They ask you the questions you have already answered a gazillion times; do you have allergies, are you taking any meds, what is your name/date of birth, etc. Then dad got to hang with me for a while which was comforting. You know, I don't think you ever hit an age where it's no longer comforting to have a parent next to you when about to face something hard. I softy dozed while waiting for the porter to take me to my surgery room, felt dad kiss my head gently as he left and the porter then came to get me to take me to the next room to wait. I'm quite calm through all of this. I'm at peace, slightly anxious but excited to get this show on the road. I know that once I cross the line into the OR, I will be one step closer to being good, being healthy, being cancer free. So once again, in the hallway by Operation Room 5 I think it was, what is your name/date of birth, what are you here to get, etc. It's quite funny how every person that touches you on the way to the OR asks you all the same questions but thank god cause I would have hated to be heading home with one less kidney or something just because you were wheeled into the wrong room.
Next, came the wheeling into the operation room......
...and I lost it. The tears they came unannounced and man did they come. The strength I felt all morning evaporated and was replaced by fear. Fear of the room itself and all the scary sterile objects, fear of the 6 or so masked people in the room. They introduced themselves to me but frankly they all looked the same. They were all lovely and kind and comforting but scary nonetheless. The resident working with my surgeon spoke softly to me about my kids, my husband, my life while the anesthesiologist worked on my left arm. She was kind, rubbed my hand and seemed interested in my kids and their lives. My left arm got cold, I was given an oxygen mask and then sleep....
Poof, I'm waking up, what seemed to be only mere moments from when my eyes closed. And then again, what is your name, date of birth, etc...What is your level of pain on a scale from zero to 10. It was 3. I felt good except for one damn thing.....I STILL HAD MY COFFEE WITHDRAWAL HEADACHE. Can you imagine!!! The worst part of my day, my day of surgery was lack of coffee. So when I told the nurse I had a headache from lack of coffee, let me tell you I had about 3 nurses laughing out loud. So the drugs I needed then were not to handle the cramps or pain from surgery, it was from java withdrawal. Never would I have thought... Once that kicked in, the nurse asked me if she could bring me a coffee. LOL.
Surgery was approximately at 2pm, an hour surgery, and I was released by 4:15. Not so bad. Recovery was good. I was not in pain, I was not nauseated, I was not dizzy. I was a tad groggy, a tad sore. I made it. I faced a fear, a fear of going under, a fear of going under the knife, a fear of not waking up, of being ill when waking up. I did that. I faced those fears. Not that it was on my bucket list but I will cross it off the list anyway.
I am a SUPERHERO. I am SUPERWOMAN (well at least for one day anyway). Now back to being me. Back to drinking my coffee....
Round one goes to Adèle. Sucks to be you Cancer!
Yesterday was surgery day. Hence the Superhero references above. And in this round, I won! I did. I had my nice white boxing gloves on (thank you Ryan Gosling) and kicked some serious ASS. I went in strong and came out stronger, albeit a little groggy, sore, stinky, hungry. But the important thing is I came out with less cancer in me, possibly no more cancer in me. Results will let us know what is needed next. A hysterectomy I know is inevitable, put possibly the news of not needing any radiation or other treatments would be just fabulous in my books.
So for those wondering on how the day went, here is a bit more detail. My day started as it does everyday : 5:30am wake-up, get kids lunches packed and bags ready by the door, wake-up kids, dress and feed kids and out the door by 7:15. Then there was coming back home and NOT having coffee. OMG! What a challenge that was. I was allowed one measured cup of water and one of white-cranberry juice. Satisfying - NOT. My escort for the day (dad) came to hang with me for a while before we had to head out the door at 9:45am to head to the Ottawa General Hospital. My given arrival time was 10:30am and we waiting at least an hour in the waiting room before being brought to a room that looked like a gym locker room to dress into a fancy little gown. The room was quite fitting if you think about the fact that you are about to go fight one of the biggest battles of your life. Then you're put into bed in a room full of people awaiting their surgeries. It's a lovely room, space and curtains between the beds. The lights could be dimmed a bit. They ask you the questions you have already answered a gazillion times; do you have allergies, are you taking any meds, what is your name/date of birth, etc. Then dad got to hang with me for a while which was comforting. You know, I don't think you ever hit an age where it's no longer comforting to have a parent next to you when about to face something hard. I softy dozed while waiting for the porter to take me to my surgery room, felt dad kiss my head gently as he left and the porter then came to get me to take me to the next room to wait. I'm quite calm through all of this. I'm at peace, slightly anxious but excited to get this show on the road. I know that once I cross the line into the OR, I will be one step closer to being good, being healthy, being cancer free. So once again, in the hallway by Operation Room 5 I think it was, what is your name/date of birth, what are you here to get, etc. It's quite funny how every person that touches you on the way to the OR asks you all the same questions but thank god cause I would have hated to be heading home with one less kidney or something just because you were wheeled into the wrong room.
Next, came the wheeling into the operation room......
...and I lost it. The tears they came unannounced and man did they come. The strength I felt all morning evaporated and was replaced by fear. Fear of the room itself and all the scary sterile objects, fear of the 6 or so masked people in the room. They introduced themselves to me but frankly they all looked the same. They were all lovely and kind and comforting but scary nonetheless. The resident working with my surgeon spoke softly to me about my kids, my husband, my life while the anesthesiologist worked on my left arm. She was kind, rubbed my hand and seemed interested in my kids and their lives. My left arm got cold, I was given an oxygen mask and then sleep....
Poof, I'm waking up, what seemed to be only mere moments from when my eyes closed. And then again, what is your name, date of birth, etc...What is your level of pain on a scale from zero to 10. It was 3. I felt good except for one damn thing.....I STILL HAD MY COFFEE WITHDRAWAL HEADACHE. Can you imagine!!! The worst part of my day, my day of surgery was lack of coffee. So when I told the nurse I had a headache from lack of coffee, let me tell you I had about 3 nurses laughing out loud. So the drugs I needed then were not to handle the cramps or pain from surgery, it was from java withdrawal. Never would I have thought... Once that kicked in, the nurse asked me if she could bring me a coffee. LOL.
Surgery was approximately at 2pm, an hour surgery, and I was released by 4:15. Not so bad. Recovery was good. I was not in pain, I was not nauseated, I was not dizzy. I was a tad groggy, a tad sore. I made it. I faced a fear, a fear of going under, a fear of going under the knife, a fear of not waking up, of being ill when waking up. I did that. I faced those fears. Not that it was on my bucket list but I will cross it off the list anyway.
I am a SUPERHERO. I am SUPERWOMAN (well at least for one day anyway). Now back to being me. Back to drinking my coffee....
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